Friday, July 5, 2013

When Pain Produces.....

Can unrelenting, blinding, throbbing, life changing pain produce anything positive?
Oh yes.....
 Ballade of the Stars


Mon Coeur
 Austin Pruitt, takes his pain and produces something beautiful. He chooses to do good with what he is dealing with. It's always a choice no matter how hard, no matter how unfair. And sometimes something beautiful appears.

Did you know many musicians suffered?

Robert Schumann suffered terribly.
Ludwig Von Beethoven was deaf!
Ravel suffered a degenerative disease of the brain.
  Felix Mendelssohn suffered multiple brain aneurysms.
George Gershwin had a brain tumor.

This young man suffers from Intracranial Hypertension (also called Pseudotumor Cerebri). www.ihrfoundation.org/

Both Stevie and I have this. Bobby has also had a bout with it. Only 1 in 100,000 people have IIH. It is high cerebrospinal fluid pressure in the brain. It has a host of symptoms, identical to a brain tumor....all unpleasant. We have brain shunts, more specifically ventriculo-peritoneal brain shunts that take fluid from our brains via a tube and drains it into our tummies. I have had 3 brain surgeries for IIH and Steven has had 1. All 3 of us have had multiple spinal taps. However, it isn't near as a big of a deal as the decompression brain surgeries as far as recovery and it sure does help. Steven came back to life so to speak after his was placed! We are so grateful.

As well as our VP shunts work, we still have days where they either malfunction or get clogged causing issues with pressure and this can be pretty nasty. Nothing can do artificially what our bodies should be doing, but we are grateful for our surgeon Dr. Paolo Bolognese and his expertise at fixing us!

Please watch this amazing video and listen to all of the others he has written also. They are absolutely breath taking. We try so hard to be positive around here with our medical mumbo-jumbo. It's inspiring to me to see someone at this age do something wonderful with his pain to bless others.

~Blessings~
Lisa

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